Click here for all information about the Physician Conference on September 26, 2008.

The National Patient and Family Conference will be in Chicago on September 26-28, 2008. Click here to find all of the Conference information.

East/West Coast Marathon Challenge to Benefit HHT Foundation, October 2008. Click here to learn more about how you can help support the HHT Foundation.

Click here to read more about the NAVBO Workshop, September 11-14, 2008 in Cape Cod, MA

Ambry Genetics in Aliso Viejo, CA will begin to offer HHT genetic testing as of July 1, 2008. Click here to be directed to the Genetic Labs section of the site. They offer Insurance Preverification. Click here for a printable form.

Click here to learn more about a new study called “Screening Behavior in Adults with HHT”, sponsored by the National Human Genome Research Institute.

Click here to read more about the HHT/CDC Conference, “HHT Health Initiative for the 21st Century,” held on March 5-6, 2008 in Atlanta.

Clinical Research Study Recruiting HHT Patients: A clinical trial is underway and is recruiting HHT patients with GI bleeding from AVMs. Investigators are using an oral drug to potentially dramatically reduce bleeding rates and need for blood transfusion. Either one of the co-investigators can be contacted: Atul Kumar, MD 631-261-440 ext. 5765 or Jim Gossage, MD 706-721-6791. Please click here for the link to the study.

HHT partners with NDRI for tissue donation.

Learn how YOU can support current events to benefit HHT

HHT Patients Needed for Mayo Clinic Study

HHT Foundation International

We are the only non-profit organization dedicated to finding a cure, the best available treatment, and education to the medical community and to those with Osler-Weber-Rendu Syndrome. The Foundation currently has over 2000 paid members and has been contacted by over 7000 individuals since our founding in 1991.

OUR MISSION is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

To achieve this mission, the HHT Foundation will :

1. Fund research to find better treatments and a cure.
2. Educate families and physicians about HHT so that awareness of crucial diagnosis and available treatments prevents needless disability and death.
3. Provide linkages among people affected by HHT.
4. Collaborate with multidisciplinary HHT Treatment Centers worldwide while advocating for patient access to these Centers.
5. Advocate for and support those with HHT while increasing public, private, and governmental awareness of the disorder.
6. Engage the scientific and medical community so that talented individuals dedicate efforts toward advances in HHT screening, diagnosis, treatment, and research.

HHT Foundation International, Inc. P.O. Box 329 Monkton, MD 21111 USA 1-800-448-6389 410-357-9932 (Outside U.S.) FAX: 410-357-0655 This e-mail address is being protected from spam bots, you need JavaScript enabled to view it