‘Our Stories’ is a new series of articles dedicated to sharing the sometimes daunting challenges and stirring triumphs of individuals and families with HHT. The aim of the series is simple: to permit us to draw inspiration from one another.

How to Share Your Story

We believe that by sharing your story, you may help someone who may be going through a similar situation. The stories submitted to ‘Our Stories’ series may be placed in our HHT newsletter called Direct Connection and/or posted on our website. If you are interested in submitting your story please contact our office by phone or email.

Our Stories:

Marianne Clancy Marianne Clancy

Frances ‘Bunny’ Jones Frances Jones

Delaine Elle Delaine Elle

Denise Hitzeman Denise Hitzeman