SAVE THE DATE: 8th HHT Scientific Meeting in Santander, Spain on May 27-31, 2009. Click on the link www.hht2009.com to get more information.

December 22, 2008: Kerry Chu, the daughter of Dennis and Maureen Routledge, is running in the Country Music Marathon in Nashville in April 2009 for HHT.  Dennis is a very active HHT Board of Director Alumni.  Click here to learn more about Kerry’s story and how you can support her and HHT.

November 30th, 2008: Order your HHT Tribute Greeting Cards to recognize loved ones in a very meaningful way during the holidays or special personal occasions while supporting the HHT Foundation.

Scott Olitsky, an HHT member, climbs Mount Kilimanjaro for HHT in February 2009. Click here to learn more about this incredible story and how you can support Scott.

In Memoriam: Pierre Lajaunias (1948-2008)

Click here to read more about the HHT/CDC Conference, “HHT Health Initiative for the 21st Century,” held on March 5-6, 2008 in Atlanta.

Thalidomide and gastrointestinal bleeding: A research study is recruiting HHT patients who have gastrointestinal bleeding and require blood transfusions. This study will determine whether thalidomide reduces the need for blood transfusions . Contacts: Atul Kumar, MD 631-261-440 ext. 5765 or Jim Gossage, MD 706-721-6791. Please click here for the link to the study.

HHT partners with NDRI for tissue donation.

Learn how YOU can support current events to benefit HHT

HHT Patients Needed for Mayo Clinic Study

HHT Foundation International

We are the only non-profit organization dedicated to finding a cure, the best available treatment, and education to the medical community and to those with Osler-Weber-Rendu Syndrome. The Foundation currently has over 2000 paid members and has been contacted by over 7000 individuals since our founding in 1991.

OUR MISSION is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

To achieve this mission, the HHT Foundation will :

1. Fund research to find better treatments and a cure.
2. Educate families and physicians about HHT so that awareness of crucial diagnosis and available treatments prevents needless disability and death.
3. Provide linkages among people affected by HHT.
4. Collaborate with multidisciplinary HHT Treatment Centers worldwide while advocating for patient access to these Centers.
5. Advocate for and support those with HHT while increasing public, private, and governmental awareness of the disorder.
6. Engage the scientific and medical community so that talented individuals dedicate efforts toward advances in HHT screening, diagnosis, treatment, and research.

HHT Foundation International, Inc. P.O. Box 329 Monkton, MD 21111 USA 1-800-448-6389 410-357-9932 (Outside U.S.) FAX: 410-357-0655 This e-mail address is being protected from spam bots, you need JavaScript enabled to view it