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HHT Foundation International, Inc.
HHT Foundation, International
P.O. Box 329
Monkton, Maryland 21111
Phone: (410) 357-9932
Fax: (410) 357-0655
* Quick Links: Office, Board, GRMAB
HHT Foundation Staff
Marianne Clancy
Executive Director
mariannes.clancy@hht.org
Nicole Schaefer
Director of Operations
Nicole.schaefer@hht.org
Sharon Williams
Legislative and Regional Alliance Manager
sharon.williams@hht.org
Mary Leigh Krock
Membership Coordinator
Maryleigh.krock@hht.org
Trish Linke
Patient Education Liaison
hhtinfo@hht.org
Board of Directors
September 2007
Robert Berkman
President
Bluffton, SC
Cheryl Wilson
Vice-President
Pineville, LA
Michael Nolan
Treasurer
Cork, Ireland
Debra Drysdale
Secretary
Newport Beach, CA
Charles Atkins
Member
Alexandria, VA
Michael Daly
Member
Longmeadow, MA
John (Jack) McMahon
Member
Downingtown, PA
Parks Moss
Member
Savannah, GA
Joel Rosner
Member
Teaneck, NJ
Dennis Sprecher
Member
Blue Bell, PA
David Stoner
Member
Blairstown, NJ
Other Important Contacts:
Marianne S. Clancy
Executive Director
Monkton, MD
Marie Faughnan, M.D., MSc
SMAB Chair
Toronto, CANADA
Peter B. Terry, M.D.
SMAB Vice-Chair
Baltimore, MD
Robert I. White, Jr., M.D.
SMAB Chair Emeritus
New Haven, CT
Global Research and Medical Advisory Board
September 2007
Marie E. Faughnan, M.D., MSc
Chair
(Pulmonary)
St. Michaels Hospital
CANADA
Peter B. Terry, M.D.
Vice-Chair
(Pulmonary)
Div. of Pulmonary & Critical Care Med.
The Johns Hopkins Hospital
Baltimore, MD
Robert I. White, Jr., M.D.
Chair Emeritus
(Interventional Radiology)
Department of Diagnostic Radiology
Yale University School of Medicine
New Haven, CT
Carmelo Bernabeu, Ph.D.
(Scientist)
Centro de Investigaciones Biologicas, CSIC
SPAIN
Joyce Bischoff, M.D.
(Scientist)
Department of Surgery
Children’s Hospital Boston
Harvard Medical School
Boston, MA
Elisabetta Buscarini, M.D.
(Gastroenterology/Hepatology)
U.O. Gastro. ed Endoscopia Digestiva
ITALY
Mark S. Chesnutt, M.D.
(Pulmonary)
HHT Center of Excellence
Dotter Interventional Institute
Portland, OR
Urban W. Geisthoff, M.D.
(Otolaryngology)
Univ. HNO-Klinik
Kirrberger Strasse
GERMANY
Daniel Goodenberger, M.D.
(Pulmonary)
University of Nevada School of Medicine
Las Vegas, NV
Alan Guttmacher, M.D.
(Medical Genetics)
Deputy Director, National Human Genome Research Inst.
Bethesda, MD
Timothy Hla, Ph.D.
(Scientist)
University of Connecticut Health Center
Farmington, CT
Luisa Iruela-Arispe, M.D.
(Scientist)
Department of Molecular, Cell, and Dev. Biology
Molecular Biology Institute
University of California
Los Angeles, CA
James E. Jackson, M.B., B.S., M.R.C.P., F.R.C.P.
(Interventional Radiology)
Dept. of Imaging
The Hammersmith Campus
Hammersmith Hospital
U.K.
Shelley Kennedy, M.S.
(Genetics Counselor)
Dept. of Medical Genetics, MBC 75
King Faisal Specialist Hospital & Research Center
SAUDI ARABIA
Anette Kjeldsen, M.D.
(Otolaryngology)
Odense Universitetshospital
DENMARK
Pierre L. Lasjaunias, M.D., Ph.D.
(Interventional Neuroradiology)
Neuroradiologie
Hopital de Bicetre
FRANCE
Michelle Letarte, Ph.D.
(Scientist)
Cancer Research Program
The Hospital for Sick Children
CANADA
Susan O. Lewin, M.D.
(Medical Genetics)
Div. of Medical Genetics
Dept. of Pediatrics, Univ. of Utah
Salt Lake City, UT
Dean Li, M.D., Ph.D.
(Scientist)
University of Utah
Eccles Institute of Human Genetics
Salt Lake City, UT
Jose Miguel Lopez-Novoa, Ph.D.
(Scientist)
Dept. de Fisiologia y Farmacologia
Universidad de Salamanca
SPAIN
Hans-Jurgen Mager, M.D., Ph.D.
(Pulmonary)
THE NETHERLANDS
Douglas Marchuk, Ph.D.
(Scientist)
Dept. of Genetics, Duke University Medical Center
Durham, NC
Jamie McDonald, M.S., C.G.C.
(Genetics Counselor)
University of Utah
Salt Lake City, UT
Franklin J. Miller, M.D.
(Interventional Radiology)
UCSD Medical Center
Department of Radiology
San Diego, CA
Christine Mummery, Ph.D.
(Scientist)
Hubrecht Laboratory
THE NETHERLANDS
Suk Paul Oh, Ph.D.
(Scientist)
Department of Physiology and Functional Genomics
University of Florida
Cancer & Genetic Research Complex
Gainesville, FL
Daniel Picus, M.D.
(Interventional Radiology)
Washington University School of Medicine
Clayton, MO
Henri Plauchu, M.D., Ph.D.
(Medical Genetics)
Service De Genetique
Hotel Dieu
FRANCE
Mary Porteous, M.D.
(Medical Genetics)
S.E. of Scotland Clinical Genetic Service
Western General Hospital
U.K.
Deborah Proctor, M.D.
(Gastroenterology)
Yale University Scool of Medicine
New Haven, CT
Reed E. Pyeritz, M.D., Ph.D.
(Medical Genetics)
Professor of Medicine & Genetics, Maloney 538
University of Penn. School of Medicine
Philadelphia, PA
Douglas Ross, M.D.
(Otolaryngology)
Yale University Scool of Medicine
New Haven, CT
Carlo Sabba, M.D.
(Internal Medicine)
University of Bari
Policlinico
ITALY
Claire Shovlin,
Ph.D., M.A., F.R.C.P.
(Pulmonary/Scientist)
Respiratory Medicine
NHLI Imperial College
Hammersmith Campus
U.K
Karel G. TerBrugge, M.D., F.R.C.P. (C)
(Interventional Neuroradiology)
Head, Division of Neuroradiology
Professor of Radioloty & Surgery
University of Toronto
Toronto Western Hospital
Toronto, ON
CANADA
Calvin Vary, Ph.D.
(Scientist)
Center for Molecular Medicine
Maine Medical Center Research Institute
Pine Point, ME
C.J.J. Westermann, M.D., Ph.D.
(Pulmonary)
St.Antonius Ziekenhuis
Nieuwegein
THE NETHERLANDS
Lawrence Young, M.D.
(Cardiology)
Section of Cardiovascular Medicine
Yale University School of Medicine
New Haven, CT
HHT Foundation International, Inc Founder Members
The HHT Foundation wants to recognize and give our heartfelt thanks to our Founder Members for their generous gift to the Foundation. A Founder Member is any individual or family that meets the following criteria:
� Contribute $100,000 over a 2 Year period
� Designate the Gift for the HHT Research Endowment Fund
HHT FOUNDER $100,000+
Charles and Oranee Abbott in loving memory of Patricia Abbott Rasmussen, Stephen Abbott and Rachel Abbott
Terence and Cynthia Brown
The Estate of David and Clara Bartley Jordan
Marc and Diana Meiches
The Grace Nolan Foundation in loving memory of Grace Nolan
John Abele on behalf of the Argosy Foundation
Anonymous Family
HHT Form 990
To view the HHT 2004 990 form please click on link.
HHT_990_2004.pdf
