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HHT Foundation International, Inc.
HHT Foundation, International
P.O. Box 329
Monkton, Maryland 21111
Phone: (410) 357-9932
Fax: (410) 357-0655
* Quick Links: Office, Board, GRMAB
HHT Foundation Staff
Marianne Clancy
Executive Director
mariannes.clancy@hht.org
Nicole Schaefer
Director of Operations
Nicole.schaefer@hht.org
Sharon Williams
Legislative and Regional Alliance Manager
sharon.williams@hht.org
Mary Leigh Krock
Membership Coordinator
Maryleigh.krock@hht.org
Trish Linke
Patient Education Liaison
hhtinfo@hht.org
Board of Directors
FY 2008-2009
James Gossage, M.D.
Medical Director
Augusta, GA
Robert Berkman
President
Bluffton, SC
Cheryl Wilson
Vice-President
Pineville, LA
John (Jack) McMahon
Secretary
Downingtown, PA
Charles Atkins
Treasurer
Alexandria, VA
Murray Brilliant, Ph.D.
Member / Board of Directors’ GRMAB Liaison
Tucson, AZ
Debra Drysdale
Member
Newport Beach, CA
Diana Meiches
Member
Prides Crossing, MA
Parks Moss
Member
Savannah, GA
Michael Nolan
Member
Cork, Ireland
Scott Olitsky, M.D.
Member
Leawood, KS
Michael K. Pruitt, Esq.
Member
The Woodlands, TX
Joel Rosner
Member
Teaneck, NJ
Dennis Routledge
Member
Garden City, NY
Dennis Sprecher
Member / Board of Directors’ GRMAB Liaison
Blue Bell, PA
Global Research and Medical Advisory Board
FY 2008-2009
Carmelo Bernabeu, Ph.D.
Chair
Centro de Investigaciones Biologicas, CSIC
SPAIN
Jamie McDonald, M.S., C.G.C.
Vice-Chair
University of Utah
Salt Lake City, Utah
Marie E. Faughnan, M.D., MSc
Chair Emeritus
(Pulmonary)
St. Michaels Hospital
CANADA
Peter B. Terry, M.D.
Past Vice-Chair
(Pulmonary)
Div. of Pulmonary & Critical Care Med.
The Johns Hopkins Hospital
Baltimore, MD
Robert I. White, Jr., M.D.
Chair Emeritus
(Interventional Radiology)
Department of Diagnostic Radiology
Yale University School of Medicine
New Haven, CT
Joyce Bischoff, M.D.
(Scientist)
Department of Surgery
Children’s Hospital Boston
Harvard Medical School
Boston, MA
Murray Brilliant, Ph.D.
(Molecular Genetics / Board Liaison)
University of Arizona
Elisabetta Buscarini, M.D.
(Gastroenterology/Hepatology)
U.O. Gastro. ed Endoscopia Digestiva
ITALY
Mark S. Chesnutt, M.D.
(Pulmonary)
HHT Center of Excellence
Dotter Interventional Institute
Portland, OR
Urban W. Geisthoff, M.D.
(Otolaryngology)
Kliniken der Stadt Koeln
HNO-Abteilung
GERMANY
Daniel Goodenberger, M.D.
(Pulmonary)
Dallas VAMC
Dallas, TX
Alan Guttmacher, M.D.
(Medical Genetics)
Acting Director, National Human Genome Research Inst.
Bethesda, MD
Timothy Hla, Ph.D.
Director, Center for Vascular Biology
University of Connecticut Health Center
Farmington, CT
Luisa Iruela-Arispe, M.D.
(Scientist)
Department of Molecular, Cell, and Dev. Biology
Molecular Biology Institute
University of California
Los Angeles, CA
James E. Jackson, M.B., B.S., M.R.C.P., F.R.C.P.
(Interventional Radiology)
Dept. of Imaging
The Hammersmith Campus
Hammersmith Hospital
U.K.
Shelley Kennedy, M.S.
(Genetics Counselor)
Ontario Newborn Screening Program
Children’s Hospital of Eastern Ontario
Ottawa, ON CANADA
Anette Kjeldsen, M.D.
(Otolaryngology)
Odense University Hospital
DENMARK
Michelle Letarte, Ph.D.
(Scientist)
Molecular Structure and Function Program
The Hospital for Sick Children
Toronto, ON
CANADA
Susan O. Lewin, M.D.
(Medical Genetics)
Div. of Medical Genetics
Dept. of Pediatrics, Univ. of Utah
Salt Lake City, UT
Dean Li, M.D., Ph.D.
(Scientist)
University of Utah
Eccles Institute of Human Genetics
Salt Lake City, UT
Jose Miguel Lopez-Novoa, Ph.D.
(Scientist)
Dept. de Fisiologia y Farmacologia
Universidad de Salamanca
SPAIN
Hans-Jurgen Mager, M.D., Ph.D.
(Pulmonary)
THE NETHERLANDS
Douglas Marchuk, Ph.D.
(Scientist)
Dept. of Molecular Genetics
Duke University Medical Center
Durham, NC
Franklin J. Miller, M.D.
(Interventional Radiology)
UCSD Medical Center
Department of Radiology
San Diego, CA
Christine Mummery, Ph.D.
(Scientist)
Department of Anatomy & Embryology
Leiden University Medical Center
THE NETHERLANDS
Suk Paul Oh, Ph.D.
(Scientist)
Department of Physiology and Functional Genomics
University of Florida
Cancer & Genetic Research Complex
Gainesville, FL
Daniel Picus, M.D.
(Interventional Radiology)
Washington University School of Medicine
Clayton, MO
Henri Plauchu, M.D., Ph.D.
(Medical Genetics)
Service De Genetique
Hotel Dieu
FRANCE
Mary Porteous, M.D.
(Medical Genetics)
S.E. of Scotland Clinical Genetic Service
Western General Hospital
U.K.
Deborah Proctor, M.D.
(Gastroenterology)
Yale University Scool of Medicine
New Haven, CT
Reed E. Pyeritz, M.D., Ph.D.
(Medical Genetics)
University of Pennsylvania School of Medicine
Philadelphia, PA
Douglas Ross, M.D.
(Otolaryngology)
St. Vincent’s Hospital
Bridgeport, CT
Carlo Sabba, M.D.
(Internal Medicine)
University of Bari
Policlinico
ITALY
Claire Shovlin, Ph.D., M.A., F.R.C.P.
(Pulmonary/Scientist)
Respiratory Medicine
NHLI Imperial College
Hammersmith Campus
U.K
Dennis Sprecher, M.D.
(Cardiology / Board Liaison)
Director Discovery Medicine
GlaxoSmithKline
King of Prussia, PA
Karel G. TerBrugge, M.D., F.R.C.P. (C)
(Interventional Neuroradiology)
Head, Division of Neuroradiology
Professor of Radioloty & Surgery
University of Toronto
Toronto Western Hospital
Toronto, ON
CANADA
Calvin Vary, Ph.D.
(Scientist)
Center for Molecular Medicine
Maine Medical Center Research Institute
Pine Point, ME
C.J.J. Westermann, M.D., Ph.D.
(Pulmonary)
St.Antonius Ziekenhuis
Nieuwegein
THE NETHERLANDS
Lawrence Young, M.D.
(Cardiology)
Section of Cardiovascular Medicine
Yale University School of Medicine
New Haven, CT
HHT Foundation International, Inc. Founder Members
The HHT Foundation wants to recognize and give our heartfelt thanks to our Founder Members for their generous gift to the Foundation. A Founder Member is any individual or family that meets the following criteria:
- Contribute $100,000 over a 2 Year period
- Designate the Gift for the HHT Research Endowment Fund
HHT FOUNDER $100,000+
Charles and Oranee Abbott in loving memory of Patricia Abbott Rasmussen, Stephen Abbott and Rachel Abbott
Terence and Cynthia Brown
The Estate of David and Clara Bartley Jordan
Marc and Diana Meiches
The Grace Nolan Foundation in loving memory of Grace Nolan
John Abele on behalf of the Argosy Foundation
Anonymous Family
HHT Form 990
