This website is operated by the Hereditary Hemorrhagic Telangiectasia Foundation International, Incorporated. HHT Foundation International is a worldwide, non-profit organization whose purpose is to support patients and families and educate medical professionals. This site is dedicated to the individuals and medical professionals who encounter the daily challenges of managing Hereditary Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu Syndrome. HHT is a genetic disorder, which affects blood vessels. This disorder is worldwide affecting males and females of all races and ethnic groups. Up to 1/3 of HHT patients can have multiple organ involvement, which can be disabling and/or life threatening. HHT can be treated successfully if correctly diagnosed.

We hope that the information provided on this website is informative and helpful. We encourage visitors to become a member of the Foundation in order to stay fully aware of advances made in research, treatment and education. If you are a member of the HHT Foundation and request a password and still are unable to successfully enter the new website, assume that the Foundation does not have your e-mail address. Please either e-mail your correct address to us or call us at the 800 number below. We will then enter your information into our database and you can then log in within a few hours and request a password which then will enable you to enter the site.

If you have any comments or questions about the site, please email us at hhtinfo@hht.org.

Click here to fill out the HHT Foundation International Survey online.

HHT Foundation International, Inc.,

P.O. Box 329
Monkton, MD 21111
1-800-448-6389
410-357-9932
FAX: 410-357-9931

hhtinfo@hht.org

” To wrest from nature the secrets which have perplexed philosophers in all ages, to track to their sources the causes of disease, to correlate the vast stores of knowledge, that they may be quickly available for the prevention and cure of disease-these are our ambitions,”

– Sir William Osler