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HHT Foundation International, Inc.
P.O. Box 329 Monkton, MD 21111 USA
1-800-448-6389 or 1-410-357-9932 (Outside U.S.)
FAX: 410-357-9931
hhtinfo@hht.org
Category Archives: About HHT
Thanks
October 3, 2007 – 5:43 pm
Important Articles
October 1, 2007 – 3:47 am
The following articles were written by the scientific and medical community so they do contain medical terminology. They are listed here for you to utilize as a resource to give your doctor. Unfortunately, we cannot give you an electronic copy of the actual article because of copyright restrictions. We have however, provided a link […]
History of HHT
October 1, 2007 – 3:45 am
To view a very detailed history of the HHT disorder presented by Dr. Frederick S. Keller, M.D., Director of Dotter Interventional Institute, Portland Oregon, called “From Symptoms to Solutions - A Multidisciplinary Approach to a Complex Disease” please click on the following link.
History of HHT
History of HHT (pdf)
Scientific Updates
October 1, 2007 – 3:44 am
In the last scientific update (June 2001 Issue), screening for pulmonary arteriovenous malformations (PAVMs) was updated. As discussed in the June Issue, the two articles from the Danish and Canadian Centers validated the echobubble technique as a more sensitive test (”almost” 100 % of HHT patients with PAVMs detected), compared with other screening methods […]
HHT In Depth
October 1, 2007 – 3:42 am
HHT is a multi-system blood vessel disorder so it can affect various organs in the body. For more in depth reading on specific areas of interest, please review the following articles.
Dental Care and Invasive Procedures
Dental Care and Invasic Procedure 1.02 Mb
Gastrointestinal Bleeding in HHT
Gastrointestinal Bleeding in HHT 1.74 Mb
HHT and Juvenile Polyposis
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Genetic Testing
October 1, 2007 – 3:40 am
Genetic testing is available for families who are affected by HHT. Development of clinical genetic testing for HHT was a long-standing priority of the HHT Foundation and we are grateful for the efforts of the many people who have made this possible.
Testing vs. Screening
Individuals who are known to have HHT need to be screened for […]
Glossary
October 1, 2007 – 3:37 am
Laypersons Guide to HHT Medical Terminology
ABSCESS (AB-sess) An infected, inflamed area in the body where pus collects.
ANEURYSM (AN-yoor-is-um) A weakened dilated blood vessel that is prone to rupture (hemorrhage).
ANGIOGRAM (AN-jee-o-gram) A test/procedure used to examine blood vessels of an organ such as the brain or lung. A small tube (catheter) is inserted into a […]
FAQs
October 1, 2007 – 2:12 am
Disclaimer
The HHT Foundation International, Inc. does not provide medical advice, nor does the printing of these answers constitute medical advice. For professional advice consult your medical caregiver.
Can you recommend a doctor in my area who specializes in HHT?
My family physician is interested in getting information about taking care of a patient with HHT. Can […]
Ask the experts
September 30, 2007 – 2:23 am
Since 1992, the HHT Foundation has been very fortunate to have a Scientific and Medical Advisory Board. This board is composed of leading scientists and a multi-disciplinary group of physicians who treat HHT patients on a regular basis. Members from this Advisory board are available to answer questions and offer advice. This site exists so […]
