The following articles were written by the scientific and medical community so they do contain medical terminology. They are listed here for you to utilize as a resource to give your doctor. Unfortunately, we cannot give you an electronic copy of the actual article because of copyright restrictions. We have however, provided a link to www.pubmed.com where you can view an abstract of the article for free and order the full text article if interested.

 

LUNG

Pollak JS, Saluja S, Thabet A, Henderson KJ, Denbow N, White RI. Clinical and Anatomic Outcomes after Embolotherapy of Pulmonary Arteriovenous Malformations. J Vasc Interv Radiol 2006: 17-35.

Gershon AS, Faughnan ME, Chon KS, Pugash RA, Clark JA, Bohan MJ, Henderson KJ, Hyland RH, White RI Jr.: Transcatheter Embolotherapy of Maternal Pulmonary Arteriovenous Malformations During Pregnancy. Chest 119:470-477, 2001

Lee DW, White RI Jr., Egglin TK, Pollak JS, Fayad PB, Wirth JA, Rosenblatt MM, Dickey KW, Burdge CM: Embolotherapy of Large Pulmonary Arteriovenous Malformations: Long-Term Results. Annals of Thoracic Surgery 64:930-940, 1997.

Gossage J and Kanj G. Pulmonary Arteriovenous Malformations: A State of
the Art Review. Am J Respir Crit Care Med 1998; 158: 643-661.

Cottin V, Plauchu H, Bayle JY, et al. Pulmonary Arteriovenous
Malformations in Patients with Hereditary Hemorrhagic Telangiectasia. Am
J Respir Crit Care Med 2004; 169: 994-1000.

GASTRO INTESTINAL

Proctor DD, Henderson KJ, Dziura JD, Longacre AV, White RI. Enteroscopic evaluation of the gastrointestinal tract in symptomatic patients with hereditary hemorrhagic telangiectasia. J Clin Gastroenterology 2005;39(2):115-119.

Longacre AV, Gross CP, Gallitelli M, Henderson KJ, White RI Jr., Proctor DD: Diagnosis and Management of Gastrointestinal Bleeding in Patients with Hereditary Hemorrhagic Telangiectasia. The American Journal of Gastroenterology Vol. 98, No. 1:59-65, 2003

Van Cursem E., Rutgeerts P., Vantrappen G. Treatment of bleeding
gastrointestinal vascular malformations with oestrogen-progesterone.
Lancet. 1990 Apr 21;335(8695):953-5.

NOSE

Fiorella ML, Ross D, Henderson K, White RI: Outcome of Septal Dermoplasty in Patients with Hereditary Hemorrhagic Telangiectasia. Laryngoscope 115:301-305, 2005.

Geisthoff UW, Fiorella ML, Fiorella R. Treatment of recurrent epistaxis in HHT.
Curr Pharm Des. 2006;12(10):1237-42.

CHILDREN

Faughnan M, Thabet A, Mei-Zahav M, Colombo M, MacLusky I, Hyland R, Pugash R, Chait P, Henderson K, White RI: Pulmonary Arteriovenous Malformations in Children: Outcomes of Transcatheter Embolotherapy. Journal of Pediatrics 145(6): 826-31, 2004.

BRAIN AND SPINE

Mandzia J, Henderson,K, Faughnan M, White RI Jr.: Compelling Reasons to Screen Brain in HHT. Stroke 32:2957-2958, 2001.

Moussouttas M, Fayad P, Rosenblatt M, Hashimoto MD, Pollak J, Henderson K, Ma TYZ, White RI Jr.: Pulmonary Arteriovenous Malformations; Cerebral Ischemia and Neurologic Manifestations. Neurology 55:959-964, 2000

Fulbright RK, Chaloupka JC, Puttman CM, Sze GK, Awad IA, Fayad PB, Merriam MM, Lee GK, White RI Jr.: MR Imaging of Hereditary Hemorrhagic Telangiectasia: Prevalence and Spectrum of Cerebrovascular Malformations. American Journal of Neuroradiology 19:477-484, 1998.

Mandzia J. L., terBrugge K.G., Faughnan M.E., Hyland R.H. Spinal Cord Arteriovenous Malformations in Two Patients with Hereditary Hemorrhagic Telangiectasia. Child Nerv Syst 1999; 15:80-83

Easey A.J. Wallace G.M., Hughes J.M., Jackson J.E., Taylor W.J., Shovlin C.L. Should asymptomatic patients with hereditary haemorrhagic telangiectasia (HHT) be screened for cerebral vascular malformations? J Neurol Neurosurg Psychiatry. 2003 June:74(6):743-8.

LIVER

Garcia-Tsao G, Korzenik JR, Young L, Henderson KJ, Jain D, Byrd B, Pollak JS, and White RI, JR.: Liver Disease in Patients with Hereditary Hemorrhagic Telangiectasia. NEJM 343(13):931-936,2000.

Miller FM, Whiting JH, Korzenik JR, White RI Jr.: Caution With the Use of Hepatic Embolization in the Treatment of HHT. Radiology 213:928, 1999.

Ianora, A.A.S., Memeo, M., Sabba, C., Cirulli, A., Rotondo, A., and Angelelli, G. (2004) Hereditary Hemorrhagic Telangiectasia: Multi*Detector Row Helical CT Assessment of Hepatic Involvement. Radiology. Jan; 230(1):250-9.

Buscarini E, Danesino C, Olivieri C, Lupinacci G, Zambelli A.
Liver involvement in hereditary haemorrhagic telangiectasia or Rendu-Osler-Weber disease.
Dig Liver Dis. 2005 Sep;37(9):635-45.

GENETICS

Krings T,,Ozanne A., Chng SM, Alvarez H., Rodesch G., Lasjaunias PL., Neurovascular phenotypes in hereditary haemorrhagic telangiectasia patients according to age. Review of 50 consecutive patients aged 1 day � 60 years. Neuroradiology. 2005 Oct 47(10):711-20. Epub 2005 Sep 1.

GENERAL

Geisthoff UW, Heckman K, D’Amelio R, Grunewald S, Knobber D, Falkai P, Konig, Jochem: Health-related quality of life in hereditary hemorrhagic telangiectasia.� American Academy of Otolaryngology-Head and Neck Surgery Foundation.

Guttmacher AE, Marchuk DA, White RI Jr.: Hereditary Hemorrhagic Telangiectasia. New England Journal of Medicine 333:918-924, 1995.

Shovlin CL, Guttmacher AE, Buscarini E, Faughnan ME, Hyland RH, Kjeldsen
AD, Plauchu H. Diagnostic Criteria for Hereditary Hemorrhagic
Telangiectasia. Am J Med Genetics 2000; 91(1):66-67.