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Legislative Advocacy: Specific Call to Action for Constituents with HHT Centers of Excellence in their State

May 2007: Specific Call to Action for Constituents with HHT Centers of Excellence in their State.

While every call, letter and/or visit to a member of Congress is important, there are some that are critical. There are 8 HHT Center of Excellence in the United States. They are in: New Haven, Connecticut, Salt Lake City, Utah, Portland, Oregon, St. Louis, Missouri, San Diego, CA, Philadelphia, PA, Rochester, Minnesota, and Augusta, Georgia. The Senators and House Representatives that represents these states and/or districts should have a vested interest in the well-being of these Centers and it is very important to gain their support. A special call to action went out to every HHT Center of Excellence Director to make sure they were actively involved in contacting their two Senators and House Representative to gain their support. The same plea went out to every HHT member in those states with customized instructions and sample letters.

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